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Public Policy in ALS/MND Care : An International Perspective.
・ISBN 978-981-15-5839-9 hard EUR 119.99
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| 著者・編者 | Blank, Robert H. / Kurent, Jerome E. / Oliver, David (eds.), |
|---|---|
| 出版社 | (Palgrave Macmillan, UK) |
| 出版年月 | 2020 |
| ページ数 | 234 pp. |
| 言語 | ENG |
| ニュース番号 | <659-L1288 659-P1969> |
解説
This book focuses on the public policy and political/ethical dimensions of ALS/MND across a wide selection of countries and argues for the need of a multidisciplinary and international approach. Policy issues addressed include adequacy of funding for research and care, payment policy and regulatory functions of public and private insurers, long-term services and caregiver support, public health and prevention efforts, access to genetic testing and assisted technologies, ensuring a competent and adequate workforce especially for hands-on caregivers, and the challenging issues of providing palliative and hospice care for ALS/MND patients, advance directives and assisted suicide that face policy makers in all political jurisdictions.