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The Right to Know and the Right Not to Know : Genetic Privacy and Responsibility. 2nd ed. R.チャドウィック他編 知る権利と知らない権利 -遺伝子のプライバシーと責任-第2版
・ISBN 978-1-107-07607-5 hard GB£ 74.00
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・ISBN 978-1-107-42979-6 paper GB£ 38.00
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★★★
電子版あり 大学・学術機関向け電子ブック(eBook)ISBN 978-1-139-87598-1
| 著者・編者 | Chadwick, Ruth / Levitt, M. / Shickle, D. (eds.), |
|---|---|
| シリーズ | Cambridge Bioethics and Law |
| 出版社 | (Cambridge U. Pr., UK) |
| 出版年月 | 2014 |
| ページ数 | 240 pp. |
| 言語 | ENG |
| ニュース番号 | <615-116 615-652> |
解説
The privacy concerns discussed in the 1990s in relation to the New Genetics failed to anticipate the relevant issues for individuals, families, geneticists and society. Consumers, for example, can now buy their personal genetic information and share it online. The challenges facing genetic privacy have evolved as new biotechnologies have developed, and personal privacy is increasingly challenged by the irrepressible flow of electronic data between the personal and public spheres and by surveillance for terrorism and security risks. This book considers the right to know and the right not to know about your own and others' genomes. It discusses new privacy concerns and developments in ethical thinking, with the greater emphasis on solidarity and equity. The multidisciplinary approach covers current topics such as biobanks and forensic databases, DIY testing, group rights and accountability, the food we eat and the role of the press and the new digital media.