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Genetic Data and the Law

Genetic Data and the Law : A Critical Perspective on Privacy Protection. 遺伝情報とその法-プライヴァシー保護の批判的視点

・ISBN 978-1-107-00711-6 hard GB£ 109.00

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電子版あり 大学・学術機関向け電子ブック(eBook)ISBN 978-0-511-91012-8

著者・編者Taylor, Mark,
シリーズCambridge Bioethics and Law
出版社(Cambridge U. Pr., UK)
出版年月2012
ページ数264 pp.
言語ENG
ニュース番号<591-757>

解説

Research using genetic data raises various concerns relating to privacy protection. Many of these concerns can also apply to research that uses other personal data, but not with the same implications for failure. The norms of exclusivity associated with a private life go beyond the current legal concept of personal data to include genetic data that relates to multiple identifiable individuals simultaneously and anonymous data that could be associated with any number of individuals in different, but reasonably foreseeable, contexts. It is the possibilities and implications of association that are significant, and these possibilities can only be assessed if one considers the interpretive potential of data. They are missed if one fixates upon its interpretive pedigree or misunderstands the meaning and significance of identification. This book demonstrates how the public interest in research using genetic data might be reconciled with the public interest in proper privacy protection.