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The Governance of Genetic Information : Who Decides? 遺伝子情報の統治－誰が決定するのか？
・ISBN 978-0-521-50991-6 hard GB£ 65.00
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電子版あり 大学・学術機関向け電子ブック（eBook）ISBN 978-0-511-63527-4
| 著者・編者 | Widdows, Heather / Mullen, C. (eds.), |
|---|---|
| シリーズ | Cambridge Law, Medicine and Ethics |
| 出版社 | (Cambridge U. Pr., UK) |
| 出版年月 | 2009 |
| ページ数 | 235 pp. |
| 言語 | ENG |
| ニュース番号 | ＜565-728＞ |
解説
This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere.